People who care for a family member who has learning disabilities face many of the same challenges as those in other family carer roles, but with distinct differences. Many people with learning disabilities depend on family support all their lives, regardless of where they live, or until the carer dies. This article explores the experiences, challenges and rewards of being a family carer, focusing in particular on what happens when the person with learning disabilities moves out of the family home. Recognising carers’ experience, expertise, involvement and what is important to them can have a positive impact on outcomes.